Jeez Rosie - I didn't realise it'd got so serious. It's bad enough having your social/recreational freedom restricted, never mind being confined to a space with a loved one who is slowly and inexorably becoming an unpredictable stranger - no wonder you're resentful. Losing the Big Band thing must be particularly painful. I take it you can't get any cover for those 3 hours? I'm thinking - and this isn't as flippant as it sounds - wouldn't it be wonderful if there existed some sort of benign medication which, when administered, placed the patient in stasis. You could undertake all your filial obligations and when you need a break, pop her a pill, do your thing, and return with no harm done.
(Chalky) The stasis pill would be a wonderful idea, but there isn't one. The nearest one can get is if she's in bed, and she sleeps well but needs to get up rather a lot for wee-wees. This is not always a reliable process (say no more). Sometimes she goes to bed early and I feel I can pop out for a swift 2 pints and a natter but I don't feel I ought to put pressure on her to do so. She has quite enough brain left to hate her situation and the problems she knows she causes me and the hallucinations are largely but not completely suppressed with medication. I have to be an accurate pill-adminstrator, 8 a day, 3 different types. (Projoy) You're probably right. It would be the easy way out and I'd feel guilty using it.
(pen) Well, don't stop entirely, but you know what I mean. :-) You may not think me so admirable if you could hear my muttered comments to myself as I go round the house.
[Rosie] In the general scheme of things, it's admirable. And cursing as you go around the house isn't bad, in the general scheme of things. I lost a parent to a long illness a couple of years ago, although my mother did most of the caring and my father was lucid and tolerant throughout. What we said to him, what we said to ourselves in private and what we said to each each other were different things.
(pen) Thanks. In some ways these things bring out the best in people and as few of us are saints we then have to let go a bit. This doesn't matter as long as we don't hurt anyone. The case of your father sounds very like my father's death, too. He was 83 and quite all there but his body had given up. Between me and my mother his impending death was taboo and in many ways still is, even after 25 yrs. He was a lot older than my Mum and born in 1895, would you believe.